About Nayelis:

Nayelis was diagnosed with Acute Myeloid Leukemia (M7) on June 17, 2009, at the tender age of 8 1/2 months old. She was immediately started on a chemotherapy regiment, and quickly went into remission after the first cycle. Because the subtype of AML she has is difficult to get into remission after a relapse, Nayelis was given three more cycles of chemo and then had a cord blood transplant on October 30th, 2009 at Memorial Sloan Kettering Cancer Center in NY, NY. The transplant was successful, and after 5 months being away she was allowed to return home.


In April of 2010, Nayelis became sick, and we were later informed that she had relapsed. Not only did the cancer return in spots of her body, but a chloroma (tumor) had also formed in the nasal cavity/sinus area. Not only did she have to start chemotherapy again, but she also underwent direct radiation. She received 6 cycles of chemotherapy and 12 sessions of radiation. As of November 2010, Nayelis went into remission.


On April 25, 2011, we were informed that Nayelis had relapsed. The cancer is back. She was admitted to Yale New Haven Hospital for further treatment. This is her third fight against this evil disease. She has been given three cycles of chemotherapy. After CT Scans, MRI's, bone marrow aspirates and biopsies, we were told that Nayelis is at a good place with no leukemic cells in her body.


Now the next step is: TRANSPLANT. AGAIN!


Nayelis was admitted to Memorial Sloan Kettering Cancer Center in NY, NY on 9/1/11. Where she was started on chemo therapy and radiation for 7 days. Her 2nd double cord blood transplant took place on 9/9/11. After the days of ANC being zero, Nayelis' bone marrow finally engrafted! Nayelis was discharged from MSKCC on 10/31/11.


Overall, Nayelis had been doing well post transplant. She was eating and gaining weight. There were no signs of GVHD.


On March 12, 2012, we received the dreaded news once again: RELAPSE.

We were told that the goal has changed from curing the leukemia to trying to control it and keeping Nayelis comfortable. Our world has once again crumbled, but our faith has not. We continue to pray for Nayelis' miracle.

AS of 5/5/2012, Nayelis has earned her angel wings. She will forever be 3 1/2 years old.

Wednesday, August 24, 2011

Ongoing Fundraisers for Nayelis


Hey Everyone! 

First and Foremost, THANK YOU all who have helping us in any and every way possible. Whether it's through prayers, positive vibes, words of encouragement, donations and any other way that I have forgotten. ITS ALL APPRECIATED! God Bless you All!!! 

We have been blessed with individuals being placed in our path that have offered to help us! 
Here are two fundraisers going on at the moment to help out with the medical & everyday expenses that we are confronted with Nayelis' fight against Leukemia. 
As many of you know, she will be getting admitted to Sloan Kettering next week, Wednesday 8/31, to start the transplant process. We will be staying in NY for indefinite amount of time. (First time we were there for almost 5 months.) This means that I will be out of work for all of this time because you know there is no way that I would be able to be away from Nayelis during this time. 

If you are interested in attending the ANC Benefit Dinner and Dance event, PLEASE know that tickets will not be sold after 9/6/11 - Villa Bianca wants a head count on that day. Please contact Sharyn at 
203-929-6024 or Sharygerry@snet.net with any questions. 


The following link is for (Nayelis) Miss Mona Rabiosa's Fundraiser:
https://scentedwicklesscandles.scentsy.us/Buy?partyId=49476915

Thanks to ScentedWicklessCandles.com by Reyhan - She is donating 100% of her commission to Mona Rabiosa (Nayelis) to help the family in anyway possible. She said, "It's the least I can do. It breaks my heart that any child has to go through this."

Also: 

Hey Football Fans!! Want to have some fun and help little Nayelis' family? Gerry created this ESPN Eliminator Challenge but instead of being free to play its $10 per person. $100 grand prize and all the rest goes to Nayelis' family for medical expenses! Inbox us for more info!! And PLEASE SHARE!!


Again, 
Thank you all for your help! 

Hugs=
Yvette, Nayelis & family 

PS- Please share this information with friends and family 
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